I thought it would be nice to fill everyone in on where Doug is now with his ONH and how he is progressing even with this little set back...
After Doug was diagnosed with ONH, we had to go through a series of tests and blood work, and also meet multiple specialist doctors, to see if anything else was affected during the development of his brain. Some children with ONH have other issues, such as diabetes isopodous, or issues with the pituitary gland. We took Doug for an MRI when he was about 3 months old. His Neurologist (doctor specifying in brain development), and Neuro Ophthalmologist (eye doctor) went over the results and everything looked GREAT! He is showing no signs of any other issues at this time, although as he gets older we will need to keep checking that everything continues in this direction.
Doug himself doesn’t let any of this hold him back. He is meeting all milestones and is on his way to running a-muck around our house. He is such a smart little man and soaks information up like a sponge. He loves anything that has to do with rocking bouncing or jumping and, unless teething is involved, he is one of the happiest and cutest little babies we have ever met (This opinion might be a little biased!:D)! Doug enojoys playing with his voice and especially likes to call (more like scream) for his ‘dada’. Even without stem cell treatment, he gives us no reason to believe that his life will be any less than normal.
All the fundraiser planning starts now! We’ve got a million ideas, but are open to any others. The form to be 'accepted' for treatment was filled out and sent in this week, and we recently got a tax credit number. Next is making an account with PNC. With this account we can then open a link to pay pal for those who would like to donate. Until then, please contact us through e-mail at: Dubdilla@yahoo.com
We will keep you updated on the fundraisers we are working on, and will include a calendar of set dates. We are also in the process of trying to figure out how to attach a meter for the amount that has been raised and some other fun things to follow as well.
We just want to thank everyone now for the support we already have and we are only just starting! It’s good to know there are so many who care for us and our family, and especially our son Doug!
Thankyou thankyou thankyou! :) -The Dillon’s<3
About Me
- Dougie
- Doug was born on September 1, 2010. At 2 months old he was diagnosed with Optic Nerve Hypoplasia(ONH). ONH is when you have an under developed optic nerve causing vision impairment. In Doug’s case, his optic nerves are about 75% smaller than average size. We were told there was nothing we can do to improve his vision, but we refused to believe that was it. After hearing about stem cell treatments being done in China, that include multiple injections & various therapies, we began fundraising. We were able to raise enough money and went to China end of July, 2012. Since then we have noticed multiple changes in Dougie's vision. He is responding to things double to triple the length he was prior, and also reacting to different colors that he had never responded to prior to going. We are ready to go back and have began fundraising for more treatments because we feel they will only improve his vision more. These treatments are not cheap and insurance does not cover any of it. Starting at $24,000 plus travel and expenses, we need around $40,000 total. We did it once; we know we can do it again! Please help us create this MIRACLE and help give our son the gift of sight.
Was told someone had a hard time commenting, so I'm testing it out to see what the deal is!
ReplyDelete